Home-based palliative care needs among caregivers of stroke patients in Yogyakarta,Indonesia:a qualitative phenomenology
Raditya Bagus Septian1
Bertha Tesma Wulandari2
1.Department of Nursing,Jenderal Soedirman University,Banyumas,Central Java 53122,Indonesia;Department of Nursing,Gadjah Mada University,Yogyakarta 55281,Indonesia2.Department of Nursing,Universitas Muhammadiyah Bengkulu,Bengkulu 38229,Indonesia
摘要：Objective:A stroke with the consequence of permanent disability leaves the sufferer dependent on the family to fulfil basic needs.Palliative care is essential for patients and their families,as caregivers,to optimize the care process and quality of life.Therefore,it is crucial to identify palliative needs for families during care.Palliative care is still limited in Indonesia.This study aimed to explore the palliative care needs of families caring for stroke patients in a home care setting in Indonesia.
Methods:This qualitative study employed a descriptive phenomenological approach and was conducted between October and November 2023 through in-depth interviews.Interviews were conducted with 10 family caregivers of stroke patients selected through purposive sampling.Interviews were also conducted with the doctor provider of homecare service as triangulation participants.The Colaizzi method was used for data analysis.
Results:Palliative care needs of family caregivers classified into five themes:(1)family perception of palliative care,(2)informational needs,(3)financial needs,(4)family members as primary care support,and(5)end of life care needs.
Conclusions:This study identified caregivers' palliative needs during patient care.The extended family and children are main care support in palliative care for family caregiver.This finding suggests that nurses should provide informational support by educating and collaborating with them regarding the provision of palliative care at home.
机标关键词：strokeamongcaregivershome-basedindonesianeedspalliativepatients
论文发表日期：2025-09-20
在线出版日期：2025-10-13（本平台首次上网日期，不代表文献的发表时间）
页数：9( 383-391 )
英文信息